Day four down, one more to go

Today was interesting. Instead of going to the Scarborough IV I fusion therapy center, we were at the hospital for treatment. The setting was a little different, but Will did such a great job. I even got several compliments on how polite, quiet and well mannered he was. Does a moms heart good to hear such great compliments about her son.

We had some problems with the IV port, it took the nurse almost 20 minutes to get it working. In the mean time we were both covered in saline solution and other stuff that I won't go into here. (you're welcome)

When all was said and done, they had to remove the port anyway as it started giving us problems at the end too. So another war wound has been added with one more to go tomorrow. All is good. Thank goodness needles and blood don't bother me in the slightest.

I'm actually thankful the port came out as it makes my arm feel better, and more importantly Will isn't as concerned about how much it must be hurting me. I have to say he has really surprised me in how affected he has been by this and the concern he continues to show me. I must have done something right!

Picture 1. My botched attempt at wrapping my arm for a shower
I tried using Saran wrap and was just going to tape the ends but I couldn't rip the duck tape with my one hand so it all got wrapped. Hint: don't use duck tape for a mummy costume.
Picture 2. My IV once it got situated, I was told not to move my arm at all so it didn't go pear shaped again.
Picture 3. Will enjoying the I've in his cup after he drank all his ginger ale.
Picture 4. Making silly face and showing off his silly t-shirt to mommy smile.
Picture 5. A couple of the fish Will was fascinated with upon arrival and departure.

Have a wonderful day, that's my goal anyway.

Day 3

Hi all. Just got home from day three of IV steroid fun. My son was with me again today. He did very well. Only started to fall apart once but held it together when I gave him my phone to play with.

He started out taking funny pictures of himself and me on his computer, made his own game out of the monopoly card game I brought, was super excited when he realized they had cartoon network on the tv there and that it was playing one of his new favorite cartoons.

They put the new IV port in my right elbow this time. They left it in so here's hoping I don't screw it up before my treatment tomorrow morning. Will was very upset to see the needle still in my arm. He started crying, I did my best to reassure him it didn't hurt. I hope he believes me. He WAS quickly diverted by talk of snacks (ah to be 10 again). He even jumped out of the car and helped me pump gas to help. He offered to go to his grandparents for a few hours to give me a rest. What a thoughtful boy I have! Oh wait, turns out he just misses them and is hoping for ice cream. Oh well, we'll pretend he is more concerned with my welfare.

So now we are home, he happily ate chocolate covered pretzels after having to eat an apple first and is on his computer playing God knows what so I ca relax for a few. Life is good

Again, pictures in random order.... Sigh, maybe I need to look into fixing the computer? Maybe?

Anyway pictures: 1. My new IV site, 2. Will's silly picture of me, 3. My arm wrapped up for the night, we'll see how well I sleep adding this into the mix ;), 4. A very bad picture of me showing how flushed the steroids are making me. (good thing it's only 5 days, so I'll be purple by Sunday but hopefully won't turn eggplant. lol) 5. The silly picture Will took of the lovely nurse who set me up.

Have a great day everyone. Btw: comments etc are always welcome in case anyone wants to know. Enjoy!

Day two

So yesterday was day two of my IV steroid infusions. Will went to his grandparents house so I could have a break.

It was stressful interactions with my parents due to the argument (outburst) from the day before. Anyway, I dropped him off and drove to my appt. I got there and they flushed my IV port (left in from the day before) and hooked me up.

For anyone who has NOT had IV steroids- I highly recommend you never try it if you don't have too. Sleep is nonexistent, everything tastes like rusty metal (yuck!) and you feel a little jittery. Or maybe that's just me, who knows....

The weird bit was when it was all over. They tried to flush out the port but the IV port had failed. I got all the medicine before it failed. Hmmm, that just seems strange to me. Anyway, they removed the port and will put in a new one today somewhere else. I wonder where? The other bizarre part to this was that my hand didn't bruise. I'm very impressed with this as I bleed EVERY time I'm stuck with a needle. Ok, I guess I can't say every time anymore can I?

All in all, not a bad day. I got a little reading in, a little rest without my sweet son. Funny thing- because he didn't come with me (maybe) he was feeling fine and asked me several times how I was feeling. How sweet is that? I never thought he would be asking so often and genuinely seem concerned.

I have such a wonderful boy who is growing all the time in all areas of his life. I am so proud of my son. He amazes me every day. Let's see if he can keep it up today and tomorrow at my appointments or will he become sicker than I am? Got to love kids.

Again, pictures are random since I can't put them where I want or caption them. I apologize. Try are of my hand with NO bruise. Praise God! Hallelujah! The second is of the bruise that developed from me baby vampire bite, and the third is me getting my steroids. Seriously, I better be wonder woman by Monday! Have a great day everyone.

Well, it is the MS

Went to my primary dr this morning. He listened to all my symptoms (complaints) called my neurologists office and talked to one of the drs there only to be told it IS an MS flare up. I have started my 5 days of IV steroid infusions. What joy, what rapture. Everything including water tastes foul. At least they left the IV/port in so I won't be riddled with bruises.

I do have one small bruise on my right forearm where they made their first attempt. The bruise started developing immediately. Didn't really show up till a couple hours later. It amused me really because there are two little pricks side by side. One from the lidocaine injection and one the failed IV. Made me think of a little baby vampire attack. Then I started giggling over why they are turning babies so young into vampires. (can you tell I'm a little sleep deprived? lol)

I had to bring my son with me today and it went fairly well. Towards the end he decided he has all the symptoms I have.....only worse. So I called my mom to see if she would be willing to watch him tomorrow. She said yes and then proceeded to yell at me for something that unintentionally upset her. I apologized for my part but she was still very upset. I can only hope that as she calms down and looks at the situation she will realize that I was out of my mind with my MS flare up and couldn't think of a way to have her not share how bad off I was with the world on Facebook. I should have just called her and asked her nicely to take it down. I know she meant well, but I wasn't in a place to think that through. U just commented on her post that things weren't as bad as she made them out to be. Again I apologize and hope that she will understand I never meant to disrespect her or not appreciate everything she and my father do for me because I appreciate it all more than I can say.

Here are some pictures in no apparent order. I don't have a computer to put them in the right order and/or caption them so I apologize for that too.

They are of my baby vampire attack, my view and IV drip, my IV port which is now bandaged, and my son occupying his time with a rolling stool and a banana as only an ASD kid can! ;). Have a great night everyone!