Sunday, January 22, 2012

The time is fast approaching.

I know I told you about our Christmas vacation, but did I tell you why we spent such a quiet week?

Well, I know I've told you we have been discussing having Will go to Spring Harbor after the new year. Guess what? The new year has come and gone. I have been panicking since Christmas about this day.

I went to a meeting at Spring Harbor on the 11th. Our case manager Jen and I put in the referral that day. 5 days later we were told he was accepted and put on the wait list. Well, we just got the call Friday saying that while we don't have the exact date, it will be the week of the 30th.

I can't convey the feelings going through me any more. I'm hopeful, worried, terrified, and have a hole in my heart that's so large I can't explain it. I feel like I've failed my child. I can't fix this for him!!! That's my job. I'm supposed to fix it for him.

Now, I don't need anyone to tell me it's not true. Intellectually I know this. But whether it's a "mom" thing or just the impossibly high standards I have set for myself, I still feel like a failure.

The panic is setting in as the time draws closer. What do I do when I'm all alone in my house? No one to come home to and cuddle in bed with. I know I can visit him, but they made it quite clear they don't want me to visit too much. I've never been away from Will for more than less than 48 hours. How do I make it for up to 2 months? How do I keep from falling apart when I do see him? When I drop him off?

I guess it helps that when I brought up the subject he got excited and told me he wants to go. Now I don't have to worry about how he'll react when he goes, although I'm pretty sure it won't be what he thinks it will be.

As much as I wish I could wave a magic wand and fix everything for Will, I know it's not within my ability. This is why as painful as it is I decided this is where he needs to be for now.

When your child watches a commercial for St Jude's hospital and tells you he wouldn't mind having cancer because he wants to die anyway, what else can you do but go to the extreme.

But what do I do if they can't help him either? Where will I go then to keep him safe and give him the happy childhood he so deserves. I know, I know. I'm getting ahead of myself. I need to think positively. I need to believe they can help because the alternative is too scary to contemplate.

If anyone is actually read this..... Please pray for my child. He needs everything everyone can give him. He deserves so much more than I have been able to do for him. I want him to want to live. Cause if ANYTHING were to happen to this miracle of mine I'm not sure I'd be strong enough to carry on. So please pray.

I'm trying to stay positive, but it's been hard lately and will only be getting harder for a while. The light at the end of the tunnel is that this will help and put us on track.

1 comment:

  1. Emily - I know you have wonderful family who will be there for you, but I want you to let me know when you have to take him in, and I will go with you if you want me to... or what ever you need - and I can stay with you that night if you want me to ... remember - Mike is just down the street from you.. (I might not cuddle with you at night like Will does, but we will see... ;-)

    Seriously - if you don't call me I will be mad at you. (not really, but I am just letting you know I'm not "just saying this to be nice - I mean it!!!!)
    Love you!!!!!

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